Monday, December 8, 2008

Without a Leg to Stand On


Surgery Discription
Originally uploaded by Ellen5e
The last few days have been really tough. I always have chronic pain, so I usually have a pretty high pain threshold. However, this latest surgery has ground me down more than any previous. Since I have had extra time awake in the middle of the night, I have used the time for closer examination of this phenomena. Why is this time so different?

Almost all of the other 39 surgeries have involved my LEFT ankle, foot, leg, knee. As a result I have gotten very good at making left-favoring body accommodations. While favoring my left side, I balance and make micro adjustments with my right side of my body, where there are no fusions or limitations to keep me from doing so.

Here is the crux of the problem. Now, that the RIGHT foot had to be operated on due to biomechanical changes resulting from all that unnatural gaiting and balancing, the LEFT foot simply cannot offer the same kind of support to the right, as the right has done for the left. It doesn't seem fair, does it?

I can hear my right foot now. "Oh sure, I'm there standing right beside you for all those dozens of surgeries, picking up your slack; supporting you. Then, the ONE time I need a little help, you wimp out on me! What's up with that?!" lol

It is by trying to play peacemaker to these two feet of mine that I learn that I have been just as guilty of not understanding the true nature of the problem. It is so easy to "blame" someone else, or to take on false guilt myself. I "should" be doing more. I "must've" done something wrong. Nope, I must examine what is really "true." What is that?

These are the facts: 21 years ago I was struck by a car which changed the direction of my physical capabilities forever. There are things that I will NEVER be able to do again on this earth. There are things that I dreamed of doing, that I will never get to do, period. The sooner I face those facts, the better.

Because I am allergic to all the pain meds that most people can take for relief, I am not able to receive the relief from Chronic pain that many people have come to expect from modern medicine. Though I feel entitled, the fact is, I am not. This "thorn in my flesh" is mine. God only knows why. But, whatever the reason, I do trust Him. In a sick kind of way, I am honored. For God's Word says that He will never give us more than we can endure. He has a whole lot more faith in my abilities than I do.

I’ve just returned from the follow-up appointment with the surgeon. Dr. Karl Raynor explained to my husband and I exactly what he did in there. He also showed us the x-rays. There is a bunch of swelling and bruising, but no infection. YEAH!

Recovery is underway. It will take some time, but I will get through it and be stronger on the other side. But, for now, it's just one step at a time on this journey of life.

If you click HERE you will see more photos of the foot up close and they are not for weak stomachs.

A Little Birdy Told Me


Oliver Comp perch 02
Originally uploaded by Ellen5e
Well, a not-so-little Patagonia Conure parrot actually told me to hang in there. This post surgery pain has GOT to let up soon. Oliver, the bird, actually jumped off of his cage, waddled down the hallway, climbed up the sheets and onto my shoulder. He was concerned about me and new that the Spirit the wonder dog had kept coming in here to see me.

Therefore, not to be outdone, Oliver made the extra effort to show that dogs are not the only loyal pets in this household.

You can see other flickr photos of my pets' bedside manners by clicking here.

Dig - Dug Drag


Excavation Day2
Originally uploaded by Ellen5e
Please pray for Steve. My poor husband has been digging for two days now, in the cold weather trying to get to the place where the lateral drain has collapsed. He is determined to uncover the spot by hand and THEN have a contractor come in to pull permits and actually perform the repair in order to save hundreds of dollars.

The only problem is, well, not having draining water for our household has already meant that he's made a run to the laundry mat; lots of sponge baths, and fine china equals paper plates. I am thankful that so far he is doing a good job of not overly straining his back and also takes frequent breaks to recover from working in the cold.

He has removed a lot of tree roots, but still hasn't uncovered the area that the snake prodding says is only about six feet from the clean-out.

You have to wonder what the neighbors are thinking. Looks grave-like especially with the black plastic bags of straw nearby. lol

Thursday, December 4, 2008

Big Pain with BAD drain


Monday we discovered that we have a BIG problem. Apparently our drain from the house to the street has collapsed. Right before Thanksgiving we had a problem with draining laundry water backing up into the tub of the bathroom across the house while also overflowing the toilet. AAH!

Thank God I happened to have just gone to the bathroom so I was there to get everything up off the floor and also put up a dam of towels to keep water from getting to the carpeted hallway. Still I spent all afternoon cleaning up and bleaching. YUCK!

My husband Steve, rented a power auger and used it in the drain cleanout and things were better... we thought. It happened again... water is not draining from tub, for a very long time. When we go and glance outside, the cleanout cap has water oozing out, which means the pipe has certainly been blocked downline.

Several homes in our 1960s neighborhood have the "gopher dirt line" running from their house toward the street showing that they too had to replair/replace drain pipe. Apparently clay drainage pipes and plus we have clay soil, so FAIL.

Right now, we are only flushing 2 times a day. Sponge bathing and Steve 1 minute shower. At least Steve is able to use toilet at work for solid waste, but I am worried when my time comes. Gonna have to use a 5-gallon bucket with lid as a chamber pot and then impose on a friendly neighbor. We need this fixed ASAP!!!!

Now here's where the real pain comes in. Normally, a repair like this would cost $3,000 plus. Steve has decided that he will use a snake, determine approx area of collapse, then dig by hand. Bigger pain, FRIGID weather. Ground is freezing up as we are having hard freezes in teens at night and 20's or 30's in daytime. PLUS Steve has a very demanding work load at his job, so not time to take a day off. So it's gonna be slow going. By the time he gets home in the evening he only has about an hour of semi-daylight with which to dig. Plus the snow is coming.

I have a bale of straw in the back to use for insulating my roses and strawberry patch. So I suggested to Steve that he fluff some of that up into some large plastic lawn bags to lay down on the soil to try to insulate temperature of soil a bit.

We've already located the gas and water lines and Steve's looked at the utilities map at the City. So, a shovelful at a time, he will dig to the collapsed pipe area and expose it. THEN, he will bring in the contractor who will pull the permits and actually do the repair. Steve can then help do the back fill to save more money. So we will get the bill from the thousands to the hundreds. All of this is gonna take so long to do : (

Please pray for my dear husband, that he doesn't hurt his back, shoulders or neck during the endeavor, as well as his overall health as it is so cold and he is under increased stress of the situations. Thank you!

I praise God that we still have water coming INTO the house, so we are not without water. We have electricity, heat, food and communications. Most importantly, we are blessed to have each other. it will be interesting to see how this all comes out.

A "NOVEL" IDEA: I thought it would be neat to have a "Tom Sawyer Painting Party"-kind of event. Friends and Christian brothers show up with shovels and "dig in". I feel so unhelpful, because I really would be out there digging myself, but God has me in surgery recovery "oh-n0-you-don't" mode. Lord knows this is a very difficult place for me to be.

This life truly is a wonderful journey and even these trials prove to be an opportunity to learn and grow in love and understanding. Thanks for reading this.
If you have any experiences or advise to share, I would very much like to hear from you.

Big Pain with Ultimate Gain

Okay, so I really thought that surgery number thirty-nine last February would be that last one I'd need in a long time. However, at my last ortho follow-up, my doctor and I discussed the need for another minor surgery. This one would be required on my "good" (right) foot.

You see, due to all the surgeries on my left (leg, ankle, foot, fusions, staples, screws and metal rod, etc....) biomechanics make me walk oddly across my right foot. Over time my big toe started turning more to cross over my other toes and metatarsal bone started shifting position.

So this surgery required opening from above, aligning the metatarsal bone with the others, and then taking another wedge of bone from big toe bones. That's right... with my surgeon's talent... I will now be straightened out and fly.... um, er, ... "walk" right. LOL

Surgery is over, and the healing begins. Since I am allergic to pain meds it makes it a painful process, but I have gotten great relief from the surgically placed pain block (now worn off) and some morpheine. The few pills they did give me for take home are helping for now, tho' the itchiness is building. Eventually, the rash reaction will outweigh the benefit of the pain and I'll stop taking it. Hopefully, I can endure for the first three worst pain days.

I am therefore back on my crutches. My good ol' friends that help hold me up as I heal. These are the original ones I got 21 years ago when all of this started. Faithfulness is the word. If these things had an odometer on them like a vehicle, they would have tripped over the 100,000 miles mark at least 4 times. : P

However, upon leaving the hospital yesterday, I was issued a new "boot" as I have now worn out my second one to shreds. I usually resole, put on new velcro and keep going. This new boot is more hard-shell plastic so will probably last even longer w/o shredding the neoprene and velcro of the fabric. It is a more visible light gray color instead of the black that I am used to. Which means I'm gonna have a harder time disguising it. Oh well, que sera.

Thanks to my Loving God, I can still celebrate walking with Him, even when I am not walking --- think about it. My soul can dance even while I am on crutches. Time to heal or is it heel? LOL

Tuesday, December 2, 2008

Need A Job

I am currently customizing my resume's to potential employment jobs. Using my graphics, design and communication skills has been used as I can help others, but more out of volunteer and learning/teaching rather than pay. And only as my Chronic Fatigue lets me. If my body shuts down, there simply is nothing I can do to keep it going.

There is one medication that I can take to help with energy... only one, non-generic, incredibly expensive medication. It is TOO expensive. So it's a catch 22. I need the medication, to be able to have enough energy to do a job to make money. Aaaah!

So freelancing is the only way I can make a living. Or having someone give me job assignments with an upcoming deadline that I can work toward on a flexible schedule. I am pretty well set up at home to do a variety of work on the computer/internet. I just need to get paid for it and then a steady inflow. That's an area of prayer that continues.

I know there is some way that I can earn money from home office working, but am very leary of all the WORK at HOME ads out on the web. There are way too many scams. It seems the only way to know if an offer/business is reputable is to research it through the Better Business Bureau or Chambers of Commerce and both of those take a lot of time. Plus the disreputable scammers are always closing up quickly so they are harder to catch. Plus, just because there is not a report at the Better Business Bureau doesn't mean that there is not fraud going on; just that they haven't been reported... yet.

The best way to get a job will be from a personal referral. Fortunately for me, all my volunteer work and growing connections on the internet are building out a good job-seeking network. But, I am trusting on my friends to help me get good solid leads. I have gifts and talents, but I just need opportunity. I need someone, or company to believe in me and help me to help them.

If there is anyone that you think could use me as a worker for a fair wage, please let me know won't you? Thanks!

Monday, December 1, 2008

Thanksgiving with a Soldier

Spencer FamilyThis is not your typical holiday greeting or a link to an online card. Rather it is a heartfelt "Happy Thanksgiving" from our WHOLE family. We are here in St. Robert, Missouri to visit with Michelle for a couple of days. We pray that all of you are enjoying your family gatherings and blessings of just being together, let alone the bonuses of yummy seasonal feasts : )
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Yes, this was the first and only time she has seen us since July 1st. NO, she did not get to graduate. We just attended the graduation of most of her company because she wanted us to meet a lot of them, the sergeant's and other cadre. Plus, we were able to learn a LOT about the daily basic training and see some of the drilling in action.

Michelle was granted an overnight pass off base which is unusual for non-grads, but the Sergeants ALL are very impressed with her. You see, she is top-notch, but cannot graduate until she is healed enough to march and run 15k. The most she was able to do before the hip stress fracture was 8k, and then they shut her down for fear of the fracture breaking on through. She sure knows her stuff and she's very good at communicating that to others; civilians or newbies or being quizzed by the brass to explain to other groups.

We are so very PROUD. She is meeting with the adversity of an uncertain future and limitations that she has no control over quite well. She is a bit bothered by the way that medical holdovers on profile (physical limitations) are treated by the rest of the troop as a whole. There ARE fakers and wimps who pretend to be injured, and then there are the legit. We met a young specialist (like corporal) who is gonna have back surgery in January. But it's those that are assigned to crutches that basically don't USE them that gives everyone a bad rep.

After completing 2 cycles now, she is respected by most everyone. But it is the army way to shun the injured to encourage quick healing and compliance.

So with her off base overnight pass, she was able to come back to the hotel with us, eat PIZZA and then we went out to a movie. "BOLT" is a new computer animated movie about a dog that our family wanted to see. It was either that, or the new James Bond movie. The dog in the movie and his relationship with the girl made Michelle really miss being home with Spirit. But it has LOTS of funny lines and happenings in the movie, not to mention the different animation styles. So we thoroughly enjoyed it.

Then, there was the Scrabble game and LOTS of good conversation, and popcorn and junk food. Then she shared the bed with me. Then in the morning, decadence of all time, Krispy Cream Donughts! We're talking lemon cream and raspberry jam filled deliciousness. That and milk was it prior to the Family Thanksgiving Dinner Event put on by the company on base at 1pm. That food was delicious. And the best part was that there was no cooking and cleaning on my part. LOL. Seriously, it was surprisingly tasty and there were an abundance of things I never even got to on the side bar.

Turkey, Ham and Beef, Mashed potatoes and gravy, yams, StoveTop OR Bread stuffing, peas and mushrooms, corn, shrimp cocktail, pumpkin pie, cheese cake, rolls, and more and more that we didn't even go to look at. They charged only $6.15 for Steve and me, and Michelle just checked in. A few of the mess hall employees pulled me aside and said things like "we're not supposed to develop close relationships with the privates, but Spencer is special," and "She's a good one," and "we all like your daughter a lot around here." The one lady (has Michelle's number memorized) wanted a photo of all three of us together. And Michelle asked for one with her and the lady together.

There were a few tears shared between us. During graduation, when the graduates are repeating the Soldiers Creed as one, was very emotional for Michelle and I. Knowing that she has to sit there while they move on. I am sure it was even more emotional for her when her first cycle graduated. The ones in which she really bonded as they broke in together.

The best tears/conversations between her and I came when I spoke with her about how proud we are of her. She and I have a SPECIAL bond. Not just parent and child. Not even as a just good friends. She is not just my offspring, but a Sister in Christ. That is an everlasting bond despite physical place, time or even death. There is great security and thanksgiving in that respect.

But the one thing that we share that no one else can understand to the degree in which I do is : the incredible pain that comes along with having your plans dashed by an unexpected, bodily, limitation in which you have NO control. Physical pain is rough enough, but the emotional pain SUCKS! Now What?

One of the greatest things that I am thankful for in regard to Michelle's situation is that she has a very strong faith. She is tough in dealing with the pain. Sucks it up nicely. BUT she is smart about not doing more damage or ignore that a problem really exists. Finding that balance is a hard, but very important skill.

Click this link to view photos

Current plans are for Steve and I to drive back out to Ft. Leonard Wood mid-December, spend a night, see a couple more museum places and then home for the holidays.

Right now, we believe that Michelle will have to report back to Ft. Leonard Wood at the first of the year and continue on'til they decide what to do next. She is due to get a promotion on January 1st, so that is at least something for her to look forward to.

Christmastime will also include a trip up to cousins and grandparents up in Northern Indiana at some point. Less presents this year due to economy, but more family valuing.

We have many, many things that we are thankful for at this time of year. You, our Dearly Beloved friends and family are chief among those blessings.

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